We use ICD codes E65.0, E88.2, Q82.0, R60.9 for our lipedema diagnosis. Obesity SpecialistĮ66.9 for obesity, though I am changing to E66.5 for Localized adiposity The CDC has not acted on this proposal, as far as we know. Revised codes for lipedema and lipolymphedema were proposed to the CDC by the Lipedema ICD-10-CM Committee spearheaded by Jeffrey Restuccio CPC and including Karen Herbst PhD, MD, Nadiv Shapira MD, and Thomas Wright MD in 2020 (see References). See Coding on the Lipedema Foundation's About Lipedema page for information on ICD-11 and ICD-10 - Germany Codes used in other countries may be different. Additional codes may be used by specialists as explained below. "R60.9 Edema, unspecified" is the ICD-10-CM code frequently used for lipedema in the United States.
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